Please Help Little Lyla

Lyla with peroxisomal disorder

 

little Lyla Click here and help Little Lyla. 

Thank you

We are completely overwhelmed by everyone’s support for Lyla. Something very special happened today and it’s come from the heart of Karl Schmidt from the Valley Raceway. He will be holding a fundraising event called Racing for Lyla. When I saw this I was in tears. We can’t thank you enough, this means the world to us, and there will always be a special place in our hearts. Thank you.

Please Help Little Lyla

Lyla is my niece. At 4 months of age, she was diagnosed with a rare genetic disorder called peroxisomal disorder. which is terminal. I would love to raise funds for Lyla,  my brother Kieran and sister-in-law Bec. Bec is already raising funds from the Starlight foundation. The funds would be used to help ease the pressure of her parents and to allow precious quality time together. Lyla has a very hard road ahead, she spends more time at appointments in hospitals then what she does at home.

Moreover with Lyla’s disorder she suffers from partial hearing loss, she has already had an operation to open up her tubes to help her breathe and swallow, Lyla may in the future end up losing her sight and eventually, her organs will start to shut down. This will end her life.

Raising Funds

Our goal is to raise enough funds so Lyla has everything she needs and so my brother can spend precious time with her and not worry about bills, rent and food on the table for my other two nieces. We take time with our children for granted I think when they are healthy, my brother works 6 – 7 days a week and he needs time with Lyla while she is here with us.

A simple cold/flu will put Lyla in the hospital for a week as her immune system is very poor, my brother can’t take time off to be with her. Giving him that piece of mind will make me feel like I am helping out by setting up this fund. Having a child in your family that is terminal makes you feel helpless as there is nothing we can do to help her. I thank you from the bottom of my heart to anyone that donates or even just reads Lyla’s story.

Click here and help Little Lyla. 

Reduce

We humbly ask for your consideration in supporting Little Lyla’s journey. Your contribution, regardless of its size, can significantly ease the financial strain on her family and offer them hope during this challenging period. Every donation contributes to Lyla’s care and allows her parents to focus on spending precious moments with her without the added worry of financial burdens. Your kindness and compassion will have a profound impact on Lyla’s life and the lives of those who love her. Thank you for your generosity.

1300 733 823