Chasing Charlie’s Cure
Our Charlie. Born 20th June 2015. The day before his daddy’s birthday. Welcomed into a world filled with love and affection with the odd tough love from older brother Hudson!
Everybody will say their child is special. But Charlie really is. He has a way of endorsing and promoting love and smiles where ever he goes. I would often say he was blessed with being able to make people happy, to make people smile. A trait that has forged courage and ability in him today.
Charlie is the boy who will break awkward medical meetings with a continuous flow of raspberries. Charlie is the boy who has the nurses wrapped around his little fingers. Charlie is the boy who will give hope to all others battling this horrendous cancer. He is our little 9-month-old superhero fighting a big battle.
He is, without a doubt, an old soul. This kid faces his day to day challenges head-on and is carrying us all through his debilitating journey with Neuroblastoma.
Neuroblastoma is rare cancer almost always only occurring in children. There are many types of neuroblastoma but they are broadly classified into low, medium or high risk, each with different treatments and prognoses. Unfortunately, Charlie has the most aggressive high-risk form. It has spread to his bones, which is how we found it after noticing a hard lump on his face. It is very rare for a child under 12 months to be diagnosed with such an aggressive form.