Warrior Raph’s Battle

Raphael Jeremiah Nadong - Raph's Battle

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RAPH’S STORY

Our little warrior Raphael Jeremiah Nadong was born on the 16th of May 2016 at St John of God, Berwick. He was born prematurely at 35 weeks via emergency C-section where a ‘CODE BLUE’ was raised as he stopped breathing and needed to be resuscitated back to life shortly after birth. Due to this emergency situation, he was sent to Monash Hospital NICU (Neonatal Intensive Care Unit) where he spent the first 5 months of his life being thoroughly investigated and assessed by a team of consultants. However, the medical team were unable to provide a conclusive diagnosis due to the rarity of his disorder. From that moment on, he had to endure a number of unimaginable challenges.

Raph in NICU - Raph's Battle

Raph’s Diagnosis

Raph has had many complex medical issues due to his undiagnosed genetic disorder, some of which include: difficulties in swallowing, cleft palate, choking, muscle rigidity, global developmental delay, breathing issues, abnormal brain function, seizures, severe hearing loss, Atrial Septal Defect or ASD (hole in the heart), contracted fingers and most recently – respiratory distress and pulmonary hypertension.

Since birth he’s been on oxygen, has been tube fed through his abdomen and needs constant suctioning to clear his airway. He requires 24/7 care as he can stop breathing multiple times a day.

Raph's Battle

Loving Family

Luckily for Raph, he has such wonderful, loving and supportive parents, Jen and Eugene, who have been beside him every step of the way. They have been vigilant and extremely dedicated to ensuring that their son is provided with the best care possible. Families and carers of children and young adults with rare diseases, experience significant psychological stress due to social isolation, unemployment, diagnostic delays, lack of information and difficulty accessing the appropriate health care.

Raph's Family - Raph's Battle

To care for Raph, they have sacrificed so much and have endured unthinkable and gruelling moments that no parent should ever have to go through. They’ve made multiple trips in and out of hospitals (Monash Hospital and Royal Children’s Hospital) including long stays from weeks to months at a time leading them to have to leave their jobs and halt their careers to care for their little warrior. Their lives have been drastically changed, but they are true warriors themselves. This journey has been physical, emotionally, mentally and financially draining for their family.

What lies ahead for Raph is very unclear but what we do know is that he requires a few surgeries in the near future and will always need a heightened level of care from both medical professionals and his parents.

Happy Raph - Raph's Battle

As their friends and family we try to provide emotional and financial assistance where we can, however, we can only provide them with so much. We humbly seek for your ongoing assistance and kindly ask that you extend a helping hand for not only Raph but also for his parents. The money raised will allow them to:

  1. Purchase all necessary special needs equipment (ie. special needs stroller, bath, mobility hoist etc.) immediately without having to rely on and wait weeks to months at a time to get funding approved.
  2. Make all necessary modifications to their home to ensure Raph has safe access around the house in his seating system.
  3. Have money readily available for future surgeries, emergencies, specialist consultations and for day to day necessities.
  4. Help alleviate financial strain.
  5. Purchase a wheelchair accessible vehicle.

How can YOU continue to help?

DONATE
https://www.gofundme.com/warrior-raphs-battle
Any donation that you can afford to help them would be greatly appreciated. Every donations counts, every donation makes a difference.

SHARE, SHARE, SHARE
Don’t just like it, share this campaign!!!
We all know the power of social media, so please help us use this space to not only spread the word and build support for Raph and his family but also raise awareness of his rare medical condition.

FOLLOW RAPH’S JOURNEY
Head over to his Facebook Group by clicking on the following link: Warrior Raph

Please help our little Warrior Raph in his journey of survival.

Sherryn Distajo (Sister-in-law)
Anne Tejido (Family Friend)

1300 733 823

(29)    For the Rate Cutter Variable where the borrower pays $1170 upfront fees then a corresponding loyalty discount of 0.10% p.a. off the Rate Cutter Variable (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(27)    For the Investor Rate Slasher Cash Back Variable where the borrower pays $0 upfront fees then a corresponding loyalty discount of 0.06% p.a. off the Investor Rate Slasher Cash Back Variable (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(26)    For the Low Rider Cash Back Variable where the borrower pays $0 upfront fees then a corresponding loyalty discount of 0.06% p.a. off the Low Rider Cash Back Variable (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(25)    For the Economizer Cash Back Variable where the borrower pays an upfront fee of $697 then a corresponding loyalty discount of 0.08% p.a. off the Economizer Cash Back Variable (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(24)    For the Super Saver Cash Back Variable where the borrower pays an upfront fee of $697 then a corresponding loyalty discount of 0.10% p.a. off the Super Saver Cash Back Variable (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(23)    For the Super Saver Variable where the borrower pays an upfront fee of $1170 then a corresponding loyalty discount of 0.15% p.a. off the Super Saver Variable (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(22)    For the Economizer Variable where the borrower pays an upfront fee of $1,170 then a corresponding loyalty discount of 0.11% p.a. off the Economizer Variable (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(21)    For the Investor Cash Back Hero Variable where the borrower pays an upfront fee of $697 then a corresponding loyalty discount of 0.08% p.a. off the Cash Back Hero Variable (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(18)    For the Home Owners Dream 1 year fixed where the borrower pays an upfront fee of $697 then a corresponding loyalty discount of 0.20% p.a. off the Home Owners Dream reverted variable rate (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(20)    For the Cash Back Hero Variable where the borrower pays an upfront fee of $697 then a corresponding loyalty discount of 0.08% p.a. off the Cash Back Hero Variable (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(14)   For the Investor Rate Slasher where the borrower pays an upfront fee of $1,170 then a corresponding loyalty discount of 0.09% p.a. off the Investor Rate Slasher rate (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(12)   For the Investor Rate Lovers Interest Only where the borrower pays an upfront fee of $697 then a corresponding loyalty discount of 0.07% p.a. off the Investor Rate Lovers Interest Only rate (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(11)   For the Wealth Maximizer 3 year fixed Principal & Interest where the borrower pays an upfront fee of $697 then a corresponding loyalty discount of 0.20% p.a. off the Wealth Maximizer reverted variable rate (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(10)    For the Wealth Maximizer 2 year fixed where the borrower pays an upfront fee of $697 then a corresponding loyalty discount of 0.20% p.a. off the Wealth Maximizer reverted variable rate (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(9)    For the Home Owners Dream 3 year fixed where the borrower pays an upfront fee of $697 then a corresponding loyalty discount of 0.20% p.a. off the Home Owners Dream reverted variable rate (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(8)    For the Home Owners Dream 2 year fixed where the borrower pays an upfront fee of $697 then a corresponding loyalty discount of 0.20% p.a. off the Home Owners Dream reverted variable rate (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(7)    For the Investor Rate Slasher where the borrower pays an upfront fee of $1,170 then a corresponding loyalty discount of 0.09% p.a. off the Investor Rate Slasher rate (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(6)    For the Investor Rate Buster Variable where the borrower pays an upfront fee of $697 then a corresponding loyalty discount of 0.08% p.a. off the Investor Rate Buster Variable rate (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(5)    For the Rate Buster Variable where the borrower pays an upfront fee of $150 then a corresponding loyalty discount of 0.05% p.a. off the Rate Buster Variable rate (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(4)For the Rate Slasher Variable where the borrower pays an upfront fee of $1,170 then a corresponding loyalty discount of 0.08% p.a. off the Rate Slasher Variable rate (at that time) will automatically apply after the 5th anniversary of the loan. These fees and loyalty discount are factored into the comparison rate. The loan setup fees are not refundable.

(3) For the Investor Rate Lovers Variable where the borrower pays $0 upfront fees then a corresponding loyalty discount of 0.06% p.a. off the Investor Rate Lovers Variable rate (at that time) will automatically apply after the 5th anniversary of the loan. These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(2)For the Rate Lovers Variable where the borrower pays $0 upfront fees then a corresponding loyalty discount of 0.06% p.a. off the Rate Lovers Variable rate (at that time)  will automatically apply after the 5th anniversary of the loan.  These fees and loyalty discount are factored into the comparison rate.  The loan setup fees are not refundable.

(1) For the Low Rider Variable where the borrower pays $0 upfront fees then a corresponding loyalty discount of 0.06% p.a. off the Low Rider Variable rate (at that time) will automatically apply after the 5th anniversary of the loan. These fees and loyalty discount are factored into the comparison rate. The loan setup fees are not refundable.

(28) For the Rate Crusher 1 Year Fixed where the borrower pays an upfront fee of $697 then a corresponding loyalty discount of 0.05% p.a. off the Rate Crusher reverted variable rate (at that time) will automatically apply after the 5th anniversary of the loan. These fees and loyalty discount are factored into the comparison rate. The loan setup fees are not refundable.

(19) For the 1 Year Fixed Wealth Maximizer where the borrower pays an upfront fee of $697 then a corresponding loyalty discount of 0.20% p.a. off the 1 Year Fixed Wealth Maximizer reverted variable rate (at that time) will automatically apply after the 5th anniversary of the loan. These fees and loyalty discount are factored into the comparison rate. The loan setup fees are not refundable.